I now pronounce sentence. 72 hours and a prayer

The appeal to Medicaid to further fund services has been denied.

As a result, I will be picking up David from the facility on Monday.  We then come home to begin a new chapter in our lives as a family.

We had an IEP meeting for him this morning.

Short term he will be homebound working on school materials supplied by the district. Long term we are applying to a day program for him.

During the IEP meeting we got a look into the life of David.

  1. Minimum five hours a week of intensive group therapy.
  2. Weekly individual therapy.
  3. Weekly family therapy.
  4. He is in a self-contained classroom for all but two classes. Those two classes are Art and Physical Education.
  5. His therapist makes regularly daily contact throughout each day to ensure that David knows she is checking on how he is doing.
  6. He has 24×7 staff support of some kind.
  7. Staff has to keep eyes on him at all times.
  8. He needs constant redirects to keep on task.

I can’t recreate this environment in my home.  It just isn’t possible.  We asked for 45 days to transition him home.  We were given 72 hours.

This is a recipe for disaster.  I pray that I am wrong, but I don’t think that I am.  I give us 2 weeks before all hell breaks loose in our home.  It might not take that long.

Please, pray for our family.  brokenI am thankful for this book “Get Your Joy Back”  it has helped me this past week as we have struggled to put some kind of plan in place to support David during this period.  By supporting David, our whole family will be supported as well.

 

Today I ask for strength in getting through this period successfully.  Honestly, I have nothing left but prayer and Hope.

Lord, I give our lives over to you.  That we may see what your plan for our son is, and through him your plan for us.  Please forgive me my short comings in the coming weeks as I rally against the system that has abandoned our son and our family.  Through your strength and goodness, we will survive. Through these trying times in our life, please lift us in your heavenly embrace.  So that my cup may runneth over, rather than act as a sieve.  Amen.

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5 Responses to I now pronounce sentence. 72 hours and a prayer

  1. This is scary. You’re on the edge of the known and about to jump into what could be a crazy mess. And I’m praying all would happen safely tucked inside God’s power, protection and might. Lord, this seems so wrong to us if we go by what we know. It seems tragic, frightening. You, though, are the God of the impossible, and I pray with all my heart that you would give beauty where ashes are anticipated. Whether that means a quick re-placement, or a shocking change in Carl’s son’s mind and behavior, or something else completely. Father, show yourself mighty on behalf of this family. Be their fierce protector. You are the Lord of Heavean’s Armies, and we pray that truth would press hard into whatever the enemy wants to accomplish here.

  2. This is scary. You’re on the edge of the known and about to jump into what could be a crazy mess. And I’m praying all would happen safely tucked inside God’s power, protection and might. Lord, this seems so wrong to us if we go by what we know. It seems tragic, frightening. You, though, are the God of the impossible, and I pray with all my heart that you would give beauty where ashes are anticipated. Whether that means a quick re-placement, or a shocking change in Carl’s son’s mind and behavior, or something else completely. Father, show yourself mighty on behalf of this family. Be their fierce protector. You are the Lord of Heavean’s Armies, and we pray that truth would press hard into whatever the enemy wants to accomplish here.

  3. My heart goes out to all of you at this time. This is so painful and frightening. Along with Laurie I’m praying and believe that the God Who never abandons us will protect and keep all of you through this transition and whatever comes as a result. 
    God nothing about this situation seems right. But it comes as no surprise to You. You do exceedingly abundantly above all we ask or can even think so we come humbly before you today and ask that You work this situation out. We asked for one thing but got another. Still we believe that You are working and able to supply all that is needed for such a time as this. We don’t know how that will look but ask YOU to grab hold of what has been dropped by others and come to this family’s rescue. We cry out do You for we know not what to do ourselves. Be their refuge, strength, and ever-present help. Be their protector and provider. Wrap Your loving arms around each one of them in the days to come. When we are down to nothing You God are always up to something. By faith we thank You in advance for all that You have done and will do. INJ!

  4. Sounds like a pencil pusher decided to cut costs and it is all about the all-mighty dollar and not about what is best for David.  Hugs and prayers for patience and wisdom.